Yeah!
Day 3 in the hospital has been a good one. Tate has not had a fever today at all, and his ANC is up to 9. The doctor said he can go home when he has not had a fever for 48 hours and his ANC is 200 and...
A Frame With Friends
Tate’s Gramps sent him a digital picture frame that people can email pictures to. He thought it would be a good way for Tate’s family and friends to surprise him even though he can’t have visitors right now. The only catch is I have to register your email on...
Saturday Night Fever
Hi. It’s Greg again, coming at you from a dark, quiet room on the immune-system-compromised section of the 7 th Floor at Phoenix Children’s Hospital. Sally asked me to write a quick message about the sciencey and mediciney things happening so far. Ha! Like I’m qualified for that. Here...
Jinxed It
Yesterday Scott and I were looking at Tate’s calendar, and we realized he only had 5 appointments spread across two weeks until the end of Delayed Intensification. We were so happy we hugged it out in the hallway. I texted my sister and mom, finally confident I could give...
Too Tired To Title
Tate had a long appointment today. His exam with the oncologist Dr. Wantanabe was followed by a transfusion of platelets, 1000ml of fluids, Vincristine, and Erwinia shots. Tate will get a hemoglobin transfusion and Erwinia shots Friday. Today his blood work indicated his hemoglobin level is too low, but...
Monday Update
Blood work from Tate’s appointment today shows he will need a platelet transfusion Wednesday before getting chemotherapy, but his his hemoglobin was fine. His ANC was in the 300s, meaning that his immune system is very depleted. “It’s functionally a zero” is how his doctor phrased it. Tate has...
Quiet Weekend
There hasn’t been much going on at our house since Tate’s last appointment. Greg and I continue to administer the at-home chemotherapy drugs, and Tate continues to feel worse. He has an appointment tomorrow morning just for blood work. It is possible he will need a platelet or hemoglobin...
Time Stands Still
Tate came into the kitchen briefly to ask for water and was happy to see it was raining. I was sitting at my desk looking out the window and was delighted to hear his voice coming from behind me. Any day he is strong enough to get into his...
All Teens Are Salty
Yesterday Tate had a very long appointment. We arrived at the clinic before 8:00am for his lumbar puncture and intrathecal methotrexate. Dr. Shah performed the procedure, and everything went smoothly. I like appointments with Dr. Shah; he always seems curious and inquisitive, never bored or just going through the...
Green Light
Tate’s blood work was very strong at his appointment today, even though he wasn’t feeling very good. The worst thing is that he is exhausted; he is still not getting enough sleep due to the lingering effects of the steroids. He also has a painful sore in his mouth...